Camsgrams, I can't say I've given any input - was sort of in a funk for awhile due to my dog dying. Heck, still am.

Ditto on what Mike said. Have tried plasmapheresis? Was he antibody positive?

Steroids can make someone temporarily get worse before they get better. Everyone responds differently. Be very careful how quickly they lower a dose or by how much. Look for signs of adrenal fatigue, such as sweating, increased tiredness, increased weakness, etc.

Have they checked out other things like his thyroid, vitamin B12, cortisol or electrolytes? Sometimes it's not the MG but something else making things worse. His internist can help out with all that.

Do watch for signs of infection while on Pred. Infections can be "subclinical" and not be really obvious. That's what happens when the immune system is suppressed.

I hope he continues to get better.

Annie