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Old 06-20-2011, 09:54 AM
PCSLearner PCSLearner is offline
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Join Date: Jan 2010
Location: middle of nowhere
Posts: 158
10 yr Member
PCSLearner PCSLearner is offline
Member
 
Join Date: Jan 2010
Location: middle of nowhere
Posts: 158
10 yr Member
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Hello! I just want to let you know that my daughter, who completed a 13-week course of vision therapy about nine months ago, just had a follow up. She hasn't had a headache since October and all of her visual symptoms have resolved (double vision, nystagmus, tracking problems, misplaced centerline). She wore prisms for several months and then suddenly didn't need them anymore. The nausea, headaches, lightheadedness she dealt with for nearly a year are gone!! Whooo-hoooo!

She worked very, very hard every day through vision therapy. She still does some of the exercises from time to time, particularly when she is feeling academic stress. I think she sees it as a preventative measure, or perhaps a lucky charm. I don't really know.

Eowyn: She also did not recognize that she was seeing double, which is incredibly difficult for the rest of us to even comprehend, but I believe it to be true.

Our neuro did send us to a neuro opthomologist (two of them actually because the first didn't know a visual field defect from his elbow) to have her visual field checked. They found deficits using the VEE test, but didn't offer any treatment. They felt the only thing to do was "wait a year and see what happens". We were fortunate to read about vision therapy and find a therapist on our own, even though we had to make weekly 500 round mile trips to see him.

Our best to anyone dealing with this particular manifestation of PCS.


PS - Reflexology and accupressure help a lot to deal with the headaches resulting from facial tension/eye strain. I learned thes techniques from Gail Denton's "Brainlash".
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