I have not been told that I have CFS. However, DD21 had it for a couple of years following mono. It was so hard on her as she was high school (freshman and sophmore year). She still fatigues easily but certainly not what it was back then.

There is a forum on NT for CFS and fibro. Check it out as you may find lots of information in there that might be helpful to you as well as answers to some of your questions.

http://neurotalk.psychcentral.com/forum12.html