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Originally Posted by Freesia38
My sx are:[LIST][*]left side leg and arm heaviness, tingling. Trouble walking/limp when really bad.
twitching in my muscles
heat intolerant (makes me tingle, really tired and sluggish)
bug crawling feeling, usually on my scalp[*]Nerve shooting pain in left leg, head, other places where they just pop up[*]loss of balance sometimes[*]dizziness[*]right eye pain, but I think it could be sinus - no blurriness
- forgetfulness - more like not finding the right word, but that could be anything! (I'm almost 40)
The sx come on mildly when I'm tired, unwell or stressed.
The last 'big' episode of really bad sx (day off work) was a month ago, and that hadn't happened for about 14 months.
Sx were really bad in the first year (just over 2 yrs ago now).
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I had alot of the same symptons at first and then later more symptons appeared. I have been diagnosed and had surgery for Chiari I malformation and Arnold's Chiari. Basically, my skull is to small for my brain. The "brain tonsils" were herniated through the base of my skull. My aquaducts were too small to allow spinal fluid to flow. It took many years to get the right diagnosis. I had been wrongfully diagnosed with ocipital neuralgia and also many doctors thought I had MS. Chiari is hard to see however the right neurologist can diagnose it. I also had a MRI study of the flow of spinal fluid in the brain also and that is when they found the "Arnold's Chiari". This is a congenital malformation but doctors have no idea why I didn't have any symptons until my late 40's. I am 48 now and had my last surgery 2/2011. Hope this information helps you in some way. I got several opinions with different doctors before I was correctly diagnosed. Don't give up.