So much information! Thank you!

He has had all that bloodwork done, and everything always comes back normal. He is "perfectly healthy" on paper.

He has been seeing a psychologist for the last two months. One of the Rheum's said that she thought it was all psycho somatic...with which we did not agree, but figured if she thought so, then others might also, so he started seeing someone, figuring that even if the situation was not caused by stress/anxiety/depression, it could be causing stress/anxiety/depression. Even though he was very resistent at first, he is now finding it very helpful to have someone to talk to. His friends have also been very supportive and concerned.

For the last 6 weeks, my son has been taking nothing at all. Advil and tylenol don't alleviate his symptoms, and we took him off the ADHD drugs. None of the docs thought the symptoms could be caused by Strattera because he took it every day, and his symptoms (at the beginning ) came and went whether he was taking the drugs, or not. Nevertheless, two of the possible side effects of the drug are muscle weakness and fatigue. Still, the muscle weakness reported was generalized (not just the legs) and my son remembers have the leg weakness going back years before he ever took the meds.

One of the few medical issues we confirmed through this process is that my son has a deviated system and some sinus disease (though no active infection). It doesn't explain most of what's going on, but does explain some of the breathing issues and headaches. He did have a complete sleep study done (family history of sleep apnea) and it was normal too.

The good news for the week is that the UC Davis doc responded to my email, and we will get in to see him in July. I am not giving up on Mayo and will go there if Davis doesn't answer our questions, but the Davis guy seems willing to do whatever is necessary to get my son in sooner rather than later, and responded personally to my email, so that sounds like the best option....for now. Based on what the local Neuro says, they are convinced he has CMS with the Dok 7 mutuation.

What I've found through this process, is that until we get a diagnosis, all I really need the docs for is to run the tests... whoever will do it first is fine with me. Now getting the best treatment plan....that's a whole different hurdle I can see in the distance, but I'm not going to "go there" just yet.

Thank you again for all your info, it is a bit of comfort, which is not easy to comeby.