If you contact Jim Broatch at the RSDSA (jwbroatch@aol.com) he can provide you with the most current list of ketamine infusion providers.
I think substantially all of the docs that are in the ketamine business have a good handle on diagnosing and treating RSD and are a pretty good bet for a starting place for your search. I have been to a number of docs on the list in the northeast, and they all knew their stuff well. My current doc is Chopra out of Pawtucket, RI and I highly recommend him. But RI is a quite a haul from MN! I would also recommend Getson from Marlton, NJ, just outside of Philadelphia. One place to avoid on the list is the Beth Israel Hospital (Arnold Pain Center, Dr. Asdourian) in Boston. Their ketamine program has been closed to new patients for 3 years or so.
Often the pain management clinics of teaching hospitals of large universities or in large cities have docs on board that are board certified in pain management and anesthesiology. If there is a large city or teaching hospital near where you live, you could call and ask if there is anyone there that specializes in RSD.
The best of luck to you. xoxox Sandy
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Originally Posted by meddy
Thank you for the responses so far. I was interested in hearing about Pete's doc....however, the down side is, paying out of pocket is, unfortunately, not an option for us...so we have to find a doc that takes insurance.
Have been in contact with Mayo..but trying to get a definitive answer has not been easy so far. I called the pain center and the receptionist says..."RSD/CRPS specialist???"....(I told her what it meant)...her response to me was like I was from Neptune.
Even if we find someone at Mayo, it still would be nice to hear from someone who may have had experience with these or other docs....I have enough experience with Mayo to know sometimes they are great...sometimes a disaster. It is not a sure thing.
Yes, I am in MN, there very well could be excellent and knowledgeable docs elsewhere in MN.
I am still interested to hear what docs others have seen, who they feel have a good handle on RSD treatment.
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