Thread: thymectomy
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Old 06-22-2011, 02:19 PM
Jenn220 Jenn220 is offline
Junior Member
 
Join Date: May 2009
Posts: 18
15 yr Member
Jenn220 Jenn220 is offline
Junior Member
 
Join Date: May 2009
Posts: 18
15 yr Member
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Draggin - the answer is, who knows.

(initial point - if there is a tumor or abnormality of the thymus, the thymus comes out, no question. The uncertainty / debate surrounding thymectomy is for patients with a normal thymus)

Yes, thymectomy is thought to be most beneficial to younger patients (but that includes patients in their 30s and maybe even 40s) within the first few years of disease onset. But even in those situations it's not a given that the thymectomy will help. About 1/3 of patients will go into remission, 1/3 will be able to take less medication, and 1/3 will have no benefit from the thymectomy. There's a clinical trial underway to hopefully gain more insight into the effectiveness of thymectomy: https://mgtx.soph.uab.edu/MGTX/about.htm

But, I've met people online who are in their 50s and 60s and had a thymectomy many years after they developed MG and have had success. Tyson and Annie are right, though, that surgery can be very tough and should be done when you're stronger and physically capable to handle it without going into crisis.

Do you have any benefit from Mestinon? Or tried any other treatments, like Imuran, CellCept, IVIg, Methotrexate, etc? You may need to make some changes in those treatments, or try something new, to try and get the MG under control.
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