Thread: Vp shunt pain
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Old 06-23-2011, 01:20 AM
ThirtyishHydroGuy ThirtyishHydroGuy is offline
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Join Date: Jun 2011
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10 yr Member
ThirtyishHydroGuy ThirtyishHydroGuy is offline
Junior Member
 
Join Date: Jun 2011
Posts: 8
10 yr Member
Angry Me too!

Quote:
Originally Posted by ericsangel View Post
i have had the same pain as you are talking about. in fact i thought i had scoliosis as my body twisted along with my spine. the doctor said the spine is twisting from something else. the body i leaning towards the right the same side the shunt tubing is on. i believe when i lean to the right it keeps the pain at a level place. the doctor was pushing my body straight today and my abdominal pain is killing me along with my spine.im not sure if the only way to find out what is wrong is to have a laperoscopy. i found out ultrasounds and other tests don;t show anything.i swear after a while people think that we make these pains up. i know i like pain, im sure you do too. just a joke it i don't joke i''ll go crazy.............
take care helen
I had my shunt places when I was seven years old, and never had it revised until I was 32, but it's always made me a bit ill and suffer from headached. I have somewhat of this issue I think you're talking about... but a bit different. They supposedly put the shunt in with the same length catheter into everyone, so even if you're an adult who will no longer be growing you have the distal end of the catheter (which you would think would be handing in your belly) actually going down further into your pelvic. I started having some crazy testicular pain as well as just general pain down there. The doc sent me to every specialist for man troubles you could think of, nothing was found. It also seems there is not a consisten agreement amongst doctors. My neuro surg here in WA said it's because the distal end of the catheter is hitting nerves down there, but would not recommend surgery because it can open me up to infection, and I had an awful infection in 2009 after the revision of the shunt, with three more surgeries and another month in the hospital where I almost died... so not wantign to go that route again. But this pain, it can make it hard to walk, it can make it hard to sit still. If you're interested I can look online for you for the study that was found of the issue.... it supposedly only happens to two percecnt of all of us shunted people.
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