Quote:
Originally Posted by nigel ep3 05
Thanks for the info Debbie. Was the treatment succesfull for you? Im from Malta not the US and went to Germany to find the cause of my knee pain, which sure enough turned out to be RSD since nothing else could be found and considering the amount of pain I had. I then got to know about the pain clinic in Saarbrucken and made it a point to travell to it and meet up with Dr. Rohr.
Eva, really appreciate all the info, its really great I have found someone who has had the treatment with Dr. Rohr, myself including my parents still dont know what to expect exactly and have loads of questions. Yes, Dr. Rohr seemed like a really nice guy when I met up with him last month and I will definatly say hi from you  . We must contact him on Monday to set a date for the treatment. He thinks there is a good chance that it can work out considering the 7 month time frame but obviously there are no guarantees unfortunatly. I really hope it works out!
I dont know from where to start regarding questions  Is there anything else inserted into you besides the IV in your neck? No hart pumps or anyhting scary like that right? (not so good with needles etc) Can you eat normally and go to the bathroom or will I be on the drip? Will doctor Rohr be there alot? He seems like a really busy doctor. Are you taken care of well in the hospital and are the nurses nice?..Once the treatment is over I plan to travell to my girlfriends family in Finland (its a really nice place and very relaxing). We would probably needed to catch two flights at least and probably a train of 5 hours also so dont want to rush to travell untill I am physically prepared.
Did you start PT once you were pain free? I really need to start PT for my right knee as my muscles are wasted. I can walk short distances slowly and all but need to re build my knee once the pain allows.
Looking forward for any help you can give me. Also, will doctor Rohr be able to do the coma treatment for you?
Thanks,
Nigel |
I’m glad I can help! Before my treatment I missed someone who could tell me about it! Great you already have met him! Dr. Rohr wasn’t sure the treatment would help on me because I have been sick more than a year (two and a half), so he’s not saying that to anybody! I think you should know that.
The only thing that will be insert is the IV in your neck, so don’t worry! The nurses will take your temperature and blood pressure every day and that’s all.
You’ll be able to eat but you’ll probably have some nausea, and you’ll be able to go to the bathroom too, but it’s not possibly for you to get a shower because of the IV. You’ll probably be too tired anyway.
Dr. Rohr is a very busy man but he will check on you every day to see how you are doing. If Dr. Rohr is having a day off there will be another doctor to check on you! I thought the hospital was a bit old-fashioned, but they’ll take very good care of you! The nurses will contact Dr. Rohr immediately if you’re feeling bad, and they are really sweet!
It sounds like a very good idea not to go back to your normally life straight away. I started in school only three days after the treatment and that was way to fast! I was just so stressed because I needed to catch up with so much.
Before the treatment I couldn’t walk at all, but after I was pain free I started to train in the heated pool. I didn’t have a trainer because every time I have had one the person has been pushing me too hard.
Dr. Rohr was the one who invented the coma to treat CRPS patients so he’s definitely able to do it, but the hospital haven’t decided if they’ll allow him to do it because it’s a very risky treatment, but unfortunately it’s my only chance to get my life back! I have waited since January for an answer, and
I’m just getting worse for every week!
Again, I’m sorry for my English.
I really wish you the best!
Eva