Quote:
Originally Posted by craftyRCC
Blondie, welcome to the forum!
I too am sero-negative, you'll find there are many people who are. It is more common than it once was. I've also had a normal EMG & SFEMG. The hot humid weather is the worst, I don't do so well in extreme cold either. My symptoms are generalized, with my arms and legs being weakest. Right now I take Mestinon 4 times daily and vitamins B6, B12, Folic Acid, and Vit D all under the direction of my neuro. Feel free to contact me!!
Rachel
|
Hi Rachel,
Thanks for contacting me. I really appreciate it. The cold has affected me greatly too over the years but with hypothyroidism that has made it worse. It was just suggested yesterday that I start taking Folic Acid so will get some of that. I am already taking the other vitamins you mention. Can I ask, which medications you take for the MG and what works best for you? Are you just on Mestinon. That alone would not be enough. I really started to feel better with the Prednisone but my face was starting to get puffy. Now he is cutting me back to 30mg. every other day. Again, any suggestions or help is so welcomed. Have a good day. Blondieslp