Quote:
Originally Posted by catie
Blondie,
I'm also seronegative and MUSK negative. I was diagnosed with a positive tensilon test and clinical sxs, as well as some improvement with prednisone and IVIG.
I'm on Imuran currently, though having difficulty going up to a therapeutic dose without my white count dropping too low. We're giving it one more try with the Imuran, but if it drops my white count again, will probably move on to cyclosporine.
My primary sx is double vision, but I also experience both arm and leg weakness, which is sporadic. It took a long seven years to get a diagnosis. It's possible that I'm dealing with refractory MG at this point, due to the delay in treatment. I'm hoping for the best with treatment, but expect that the vision issues won't resolve and this may be the best it gets.
And, yes, the hot weather does increase my sxs, though my neurologist doesn't seem to think there is a connection. 
Cate |
Hi Cate,
What is refractory MG? Just vision? I had 2 episodes of double vision several years ago but it was chocked up to medication I was taking for fibromyalgia. I am also hypothyroid and take a few medications for each of these problems. I also have Fuchs Dystrophy which is a rare eye disorder which eventually could mean a corneal transplant and Plantar Fascitis which makes it difficult to be on my feet for long periods of time. Now with MG it has really crippled my lifestyle. I have always been an active person and still trying to stay that way as much as possible but some days I just can't seem to function.
Do you feel the Imuran is the best medication for MG? I really appreciate all your help. I hope you have a good day. Thanks, blondieslp