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Old 06-23-2011, 11:15 AM
craftyRCC craftyRCC is offline
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Join Date: Sep 2010
Location: Central NJ, USA
Posts: 123
10 yr Member
craftyRCC craftyRCC is offline
Member
 
Join Date: Sep 2010
Location: Central NJ, USA
Posts: 123
10 yr Member
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Blondie,

I'm only taking Mestinon right now, I was started on 30mg 3x daily and then increased to 60mg 4x daily. It seems to be working pretty well. My neuro wants to hold off on steroids as long as possible. I'm all for that! I wasn't tested for MuSk, my insurance company denied the request, they felt there wasn't any clinical reason at the time. My neuro dx'd me based on symptoms and some improvement from Mestinon. I also have a B12 absorption problem which caused a host of their own neurological issues and might have caused MG to rear it's ugly head!

Have a good one!
Rachel
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