Thread: lrk
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Old 06-23-2011, 07:37 PM
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catra121 catra121 is offline
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Join Date: Jan 2010
Location: Illinois
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catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
15 yr Member
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I am so sorry to hear that you are going through this. The loss that we deal with is something that most people who don't have RSD do not understand. Right now I am only able to use a wheel chair or crawl to get around (RSD in my left ankle). I was using crutches and a walker for a while and I thought that was bad at the time...but now I would give almost anything to be back to using a walker or crutches again.

Have you looked into seeing a doctor with experience in dealing with RSD? Have you tried anything besides just medication to help with your pain. I haven't had much luck with blocks, but a lot of people do...and there are a number of other treatments out there that people have had success with. Everyone is different though.

And I totally understand where you are coming from with regards to the medications. I hate having to take pills...but often with RSD the key is to find the right combination of medications to help with the pain. Unfortunately that sort of treatment requires taking stuff every day, so if that sort of therapy doesn't interest you then it may not work.

I find that sometimes when working with doctors who don't know a lot about RSD (or any other condition for that matter) it can help to go in with information about different treatments that you may be interested in (medications, procedures, etc). If they are unfamiliar with any of it, they can look into it or refer you to someone who may have more experience.

What sort of treatments have you tried? There are a lot of people on here with lots of experiences. And we are always here for you if you just need to vent too. This condition is so frustrating...so many things about it that are just unknown or just plain freaky.

I hope you feel better soon and are able to find some of the answers that you are looking for.
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