Hi
Welcome to the boards though sorry for all you have and continue to go through. Have you seen a pain management doctor? Often they do more for pain control then a neurologist etc. Since you have had benefits from neurontin did you talk to your doctor about increasing it? Though Mrs D has stated swelling can happen from this med. I have swelling too and I understand the pain it causes.
I think on here too it was stated infections can cause PN. Do you feel your staph infectiong may have? Have you seen a rheumatologist?
I have severe eye problems and pain. I have been to over 50 apts and 10 eye specialists plus neurologists etc. I understand the fears you have. It has been hard to find a doctor who connects my rsd/pn and the eyes.
If I were you I would see a rheumatologist if you have not. Also have you had mris's? Also lab work for auto immune etc conditions. I wish I could offer more but I know the more educated on here will come along to help.
Hang in there