Hi Linda,
So sorry to read your story. Many of us have been there. You don't say where you are from, so its difficult for any of us to recommend a doctor or Pain Center for you.
If you go to the RSDSA.org website you will find a wealth of information on RSD, including a search tool for locating board certified pain management and anesthesiologists. In southern New England I have found that they are the kind of doc that is best suited to treating RSD. Other RSDers, around the Philly area in particular, have much better results with neurologists.
There is a lot of great information on this board, read back through our postings and try to learn as much as you can about treatments, meds, docs, etc. Finding a good doc is really hard, many of us just spin in circles until we find that one special person who truly understands RSD and our pain and turns our life around by offering us the right blend of meds and treatments to get us back on our feet again. There is no cure, but with the right care you can get some of your old life back.
Don't ever give up...and keep us posted. XOXOX Sandy
Quote:
Originally Posted by linda koeppel
I use to be so healthy. I was doing arobics 30 minutes every day. Then I was in a car accident and had a leg injury. The E.R. did not give me any antibiotics while I was there, did not send me home with any, and they did not give me a tetnus shot. One month later that injury develped a life threatening infection. The new doctor saved my life by removing part of my calf. Then in that same site I developed RSD. A year after being diagnosed with RSD in my calf area, I fell on both knees. The RSD spread up my leg to my knee and up to my upper thigh. I developed RSD in the other knee as well. I have to have pain management or I do not walk, or I use a cane, or use a walked. My pain managemnt doctor does a good job of managing the pain most of the time. However, he does not know about RSD. My neurologist does not know much about RSD either. No one can tell me anything. I am weak in the knees and legs. I have fallen twice in one weak. I have no idea what to expect in the future. I take pain pills only when I have to as I do not want to be dependent on them. No one can tell me anything around here.
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