Originally Posted by pcslife

eddyx77 : I am in a similar situation like you and been 2 years now. 8 years!! I can't even imagine what you are/were going through. But I can relate some of your symptoms. Terrible, imbalance (good analogy by your doctor), eye contact etc., The tough ones are I cannot around people and have a conversation without getting dizzy and headaches. I really have to try hard to look at some one's eye and talk and if I do I get disoriented. I don't go to restaurants, malls etc., anymore. I do have to to to store and it is a night mare everytime. My legs gets weak and I get nauseous too. I have to go in and out in 10 mins in any stimulating place. I cannot find work around for many symptoms.

I wasn't able to watch t.v., be on computer etc., for few months. That was terrible and you can't even read a magazine and sure is hell. I can understand that. Some symptoms improved and some got worse. For my main symptoms I still cannot find any reliefs.

Because of all these symptoms I am pretty much confined in my apartment most of the time. I did have some mild Irritable Bowel Syndrome before head injury with few work arounds and new probiotics I even forgot I have that. After my mTBI it got worse too. Most likely bcus of all the nasty meds doctors put me through.

I did my share of chiropractors, HBOT, acupuncture etc., and exhausted all my savings. I do some part time work from home just so I can pay bills and keep going to doctors/therapists (with no change in my symptoms). I also did Vision therapy for 2 months and didn't see any improvement. But my rehab doctor believes most symptoms from my vision so I may try that route again. Before I was so optimistic with anything I try and now I just go without any expectations.

I do want to go out and enjoy the world or atleast go to the park next door. Each time I try I end up terrible. I cannot walk one block without feeling dizzy. I live in a great city which has lots to offer (Washington D.C metro). Summer used to be my fav. time and lots of hikes, festivals etc., Now all I can do sit and look outside my window. some member mentioned how being in a Hawaii can be tough with PCS. True that.

I know a 90 year senior citizen who does biking, dancing, traveling etc., and enjoying his life. Even he feels very sorry for my condition. I am in my early 40's.

I do think what is the point. If you think you are escaping this PCS hell do you know where you end up. We can only think we are escaping. I also think what kind of guilt/agony my family and some friends has to go through rest of their lives.

I don't think there is one pill or surgery or therapy to fix this. All we can do is keep trying. One thing I really do try before giving up is Stem Cell Therapy. Only clinical trials are in U.S now and you have to travel outside U.S. If I can tolerate the long flight I sure would do it.