eddyx77 : I feel the same way as you feel. No one should put through this agony but as you know millions suffer after tbi (mild or severe).

One member in this board went to China to get stem cell therapy (SCT)and not sure how much success he had. He sure improved and don't come here anymore I think. I had bleeding on brain (contusions) and still have evidence in MRI (minimal encephalomalacia). So that is the reason I am thinking but still researching. Most of the good treatment is in China and India. In India you can google for Geeta Shroff for SCT.

I assume PCS is also a mild form of TBI. If not I am not sure what PCS is either. So you have to look for SCT for TBI. Regarding stem cell therapy it is at infant stage right now but making a huge progress in many fields. For TBI there are many success stories with SCT. Many doctors still don't believe in PCS unfortunately.

SCT is at an infant stage right now and already seen success where conventional medicine gave up on them. I personally know some one who had Muscular Dystrophy where doctors gave only few years and with SCT he not living but making a good progress with movements, breathing etc.,

SCT is an experimental procedure and there is no guarantee and what happens long run no one knows. There is even a chance things may get worse after therapy. I am considering SCT only if there is no hope of recovery and/or condition keep getting worse.

I just post few and as I said it is not specific for PCS but overall for brain injury.
http://articles.timesofindia.indiati...y-cell-surgery

http://www.facebook.com/pages/Stem-C...575461?sk=wall


Also you hear stories where people recover remarkably and go back to normal life. I have few relatives, friends, neighbors etc., some who died unfortunately and rest of them recovered with no lingering issues and went on with their life.

When I talk to them and ask if they have any issues even like headache, sleep disorder etc., they say no issues and they are doing fine. 2 of them drinks heavily, smoke etc., and got into accident after drunk and was in coma for few days. After 6-8 months they recovered very well and started doing all the bad things all over again as if nothing happened. I know quite a few of them with mild to severe and all are doing well. Few months ago I met a fit gentleman in his 50's and was in coma for few weeks six months ago after TBI. He was in wheel chair but now slowly walking and he was an avid bike rider. He has none of the symptoms I have. He was so sure he will ride back again in few months and I wouldn't be surprised. Even in this board many people recovered but don't post much after recovery and carry on with their life which is good. So most of my family members and friends are surprised I am still suffering.

I did Neurofeedback and did saw some success. Because of TBI my olfactory system/frontal lobe damaged and had terrible smell disorder. Now it improved a lot but in the beginning immediately after Neurofeedback bad smell,headache/dizziness went down a lot but only temporarily. All my symptoms comes back the next day when I wake up. I went for many sessions and the effect didn't last long. I tried HBOT but didn't find much success with that.

As for any treatments/therapies/meds unless you try there is no way to know. This board is really helpful what all treatments/therapies/meds exist. It is up to us to try. I will be soon going for a Sleep Study as well since my new Neurologist wants me to do that. His thinking now is after 2 years I have to keep pushing it hard. He also prescribed very low dosage topomax and said it is only a try. Atleast he is not pushing any heavy meds and thinking in a different way. Yoga, tai-chi even dance lessons he wants me to do. Some yoga/tai-chi/exercise I am ok but not dance lessons. If I do dance lessons I am completely recovered that means. Who knows it may or may not help?

I sure keep you posted if anything at all and you please do the same.