Blondieslp, I am seropositive for Acetylcholine modulating antibodies. 3% - 4% of MGers only have those, though I suspect it's more.

The AChR and MuSK antibodies may only be the tip of the neuromuscular junction malfunction iceberg. Simply because you are seronegative does not mean you don't have MG. MG is a clinical diagnosis that is backed up with tests. There simply aren't that many other diseases that look, walk, talk and droop like MG!

Having a good neurologist is key to figuring things out and getting good care.

I wonder if it's the Prednisone making you feel shaky. Do you know that it can cause glucose issues in some people and in some it can cause diabetes? I think it's worth your while to talk to your primary doctor about setting up a walk in lab appt. for when you feel shaky. Or find someone with a glucose meter to check your blood glucose. Sometimes those "mini-clinics" in malls and grocery stores have the ability to do a quick check of your glucose too.

Don't get discouraged. MG can be a tough disease. The weakness can be unpredictable and you have to be able to roll with the MG punches or you might find yourself upset on a daily basis about what you can't do. Try to alternate activity with rest. And keep as coolish as you can!

Have you seen a neuro-ophthalmologist? They aren't the same as an ophthalmologist/regular eye doctor. They have tools to determine if you have fatigable eye muscles and what degree of DV you have.

Since you now have breathing problems, you should really go see a pulmonologist. They should check how you are doing now and then, if you get worse, they can see how much worse. Neurologists and pulmonologists work together in a hospital if a person with MG has to be admitted. There is nothing like having a very good pulmy. Mine puts in standing orders for breathing tests, especially MIP (maximum inspiratory pressure) and MEP (maximum expiratory pressure), which are specific for someone with a neuromuscular disease. If I get worse, I get in right away for tests whether I have an appt. or not! She knows I am the best judge of how my MG is doing and trusts me.

I hope you will have more conversations with your neurologist and your primary doctor (about glucose and other matters). Your general health is important to be checked out too from time to time. When was the last time you had an ECG?

Good luck with all of this. MG isn't fun but you can deal with it. Give yourself some time to adjust.

Annie