Tyson-It usually takes 3 1/2-4 hrs. to infuse 25grams (in 250ml) of IVIG. I get 5 days every 21 days. My max rate is 120 and we start at 20 and go up by 20's. Are you getting a bigger dose than me or going slower? I get a lot of side effects so my rate is actually pretty slow I hear....

Annie--I just had a metabolic panel that was great but I haven't had a before and after test. I am a great at hydration and they don't worry about that at all with me but I will bring up the tests and see what they say. Thanks!

And you are right...I am likely a few activities away from a crisis since I am weaker this morning and was having increased choking last night. I am lying very, very low today and praying IVIG kicks in soon!!!!!!!

debra