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Old 06-26-2011, 11:02 AM
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stevem53 stevem53 is offline
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stevem53 stevem53 is offline
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Join Date: Aug 2006
Location: Rhode Island
Posts: 1,221
15 yr Member
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Quote:
Originally Posted by soccertese View Post
sure i waited long as possible before any meds, maybe 6 years before any. can't tolerate agonists so my only choice is l-dopa. try to stay below 600mg/day so for the last 2 years on it it works well. tradeoff is hours of being very uncomfortable and having minimal mental and physical functioning in the early morning and evening when it's worn off. would i recommend someone start on it? i'm no expert but i feel i spent far too long trying to "get used" to mirapex.

my advice? exercise. i believe it slowed my progression and currently it is therapeutic. i lift weights, use a recumbent bike and a portable stair stepper.
I can relate to the 600 mg per day ilmit..A few weeks ago, I tried 800 mgs of Stalevo per day, and after 3 weeks I cut back down to 600, and decided to just deal with the of time..It is certainly is better than 3 hours of dyskinesia every night, and muscle cramps in my right arm and leg, that are at their worse when I try to lay down
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