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Old 03-09-2007, 02:40 PM
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LizaJane LizaJane is offline
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Join Date: Aug 2006
Location: Brooklyn, NY
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15 yr Member
LizaJane LizaJane is offline
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LizaJane's Avatar
 
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
Default another opinion

I think you got a really nice note back from him. He acknowledged that you don't have to have abnormal conduction studies to have neuropathy, and that even with normal tests you can have significant pain. If you like the Topamax, he'll work with you with it; on the other hand, he thinks you'd be better off, I think, with the pain group. And that is probably true, because Topamax would generally not be the first choice of a pain practice, from what I'm seeing here.

Sounds like a nice guy. Also, you should know that governmental privacy regulations, HIPPA, which you sign in every doctors office, direct doctors to NOT use email with their patients. So he went out on a limb with you. He could get into trouble for giving any medical advice whatsoever via email.
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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