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Old 06-27-2011, 10:50 AM
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RLSmi RLSmi is offline
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Join Date: Oct 2006
Location: dx'd4/01@63 Louisiana
Posts: 562
15 yr Member
RLSmi RLSmi is offline
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Join Date: Oct 2006
Location: dx'd4/01@63 Louisiana
Posts: 562
15 yr Member
Default Generic carbi/levodopa since day 1 of "suspected PD"

Quote:
Originally Posted by stevem53 View Post
I can relate to the 600 mg per day ilmit..A few weeks ago, I tried 800 mgs of Stalevo per day, and after 3 weeks I cut back down to 600, and decided to just deal with the of time..It is certainly is better than 3 hours of dyskinesia every night, and muscle cramps in my right arm and leg, that are at their worse when I try to lay down
That was more than 10 years ago.

My current anti-PD regimen is 1 25/100 immediate release carbi/levo plus 1 50/200 CR carbi/levo daily at 5-hr intervals. That adds up to a total of 900mg carbi/levo daily, but actually less, since the CR part is probably only 60-70% absorbed.
I also take 100mg amantadine and 300mg ubiquinol. I still believe in dextromethorphan, which I take 3.5-4mg of faithfully each night at bedtime.

I continue to progress slowly, with DK present but not uncontrollable.
Early mornings, pre-meds, and late evenings, after 10pm are most troublesome. Festination and postural instability at "off" times. Freezing and falls not currently a problem.

Dependable "on" time is about 16 hours, allowing regular 1-mile walks with the dog, mowing 1/4 acre lawn each week, and pretty much unlimited mobility while on.

Bottom line, I'm currently pretty satisfied with my situation.

Robert
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