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Old 06-27-2011, 01:38 PM
hydrotexan26 hydrotexan26 is offline
Junior Member
 
Join Date: Jun 2011
Posts: 18
10 yr Member
hydrotexan26 hydrotexan26 is offline
Junior Member
 
Join Date: Jun 2011
Posts: 18
10 yr Member
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I've had hydrocephalus since I was 2 months old. I had 2 shunts at one point in my life and like you one of them stopped working along the way (probably around 8 or 9 years old is when they think it stopped working. I had a revision on my working shunt when I was 13. Since I've been ok with just the one shunt. The dr's didn't want to replace that 2nd shunt since I was showing no symptoms. From my understanding they have the idea "if it's not broke, don't fix it." So, I've been living for about 15 years now with that non working shunt. So, it is possible. Recently I've been having some symptoms with my working shunt and they've been doing all kinds of test to prevent having to replace the whole shunt. Just trying to figure out if there are blockages in a certain place so maybe they can just replace the valve or the tubing. Maybe your body has been able to handle the CSF for all this time but now it's getting to where it cannot sustain it anymore. I suggest you see a neurosurgeon just to get it checked out. Throughout the years i had CT scans and a dr checkup once a year to make sure all was working. I can tell you from experience when that shunt stops working and your body cannot function without it that you are SICK!! Last time I had to get a revision I was vomiting, had a headache that would not go away with any kind of pain med, and wanted to sleep all the time. I feel that my shunt is still working right now but is just slowing down. I really hope you are able to figure this out. Sorry, if I havent' been much help to you.
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