I'm sorry to hear of your difficulty, Kitty, and I hope that you find a way to treat the problem. In the meantime, you might consider treating the symptoms of intolerable pain. I work with pain patients, and know that there are multiple new options available. I'm not sure where you are from, but there are several terrific "Pain Centers" in the Boston area that can discuss pain pumps, stimulation, and other options for you. Good luck.