They thought I had Meniere's but they revoked that diagnosis when they found out I had MG so that is interesting they are looking at both for you. Does your ENT know about your MG? I have severe and profound hearing loss in both ears and wear hearing aids. The hearing dropped off dramatically just before my first MG crisis and then just got progressively worse from there. The hearing has stabilized now for several months first with lots of prednisone (now only at 7.5mg per day) and then IVIG( 5 days every 3 weeks). There is some evidence that immunomodulators can help my ENT says. They just found out that there may be more than one cause to my loss: sensorineural, autoimmune (MG), and now cochlear otosclerosis.

I have tinnitus that also started at the exact same time of that big drop and has continued 24/7 for the last almost 5 years now. Vertigo started about 3 months before hearing loss and tinnitus began but I have it VERY seldom since MG treatment started one year ago. So, I really think that they are connected somehow. When I am better, the vertigo is maybe 1x every 3 months. I still have dizziness but I am on meds that can cause dizziness and otosclerosis can cause it too so not sure about that.

I have been told that to have hearing loss and MG is very rare but read that acetylcholine is the neurotransmitter of the hearing system so it does make sense. You can google "cochlear, myasthenia, hearing loss" and get the article.

Let me know what your symptoms are, k? Both with Meniere's and with MG...debra