Alice, Have you read this yet? At least someone is looking at MuSK MG patients. Hope you're doing okay.
http://www.ncbi.nlm.nih.gov/pubmed/21674519
And now some think that thymectomy in MuSK shouldn't be done?
http://www.ncbi.nlm.nih.gov/pubmed/21595175
Also, it sounds like India is doing research on MuSK patients too. I just thought you might want to know, since you have access to publications.
And I want to vomit when I read articles like this.
http://www.ncbi.nlm.nih.gov/pubmed/21650005
Sure, if we take massive amounts of harmful drugs, our lives are magically all better.

Not.
Annie