Magnate
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Join Date: May 2007
Posts: 2,998
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Magnate
Join Date: May 2007
Posts: 2,998
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I am sorry you are dealing with this but welcome to the boards. Pre rsd and pn dx they thought I had TTS. I did not though. I was in an air boot for many months which actually made worse in the long run. I was so sensitive and lacked range of motion. Getting out of the air boot and in shoes was horrid pain. I felt like knives were in my foot and a broken ankle.
I am having a hard time with socks again but for me I had to slowly reintroduce these items. I could open a sock shop with how many I have tried.
As for PT well I have not had the best luck with it. When I went to Cleveland Clinic though program they said I had to get moving or I too would atrophy. I already have little range of motion. So I started walking on my own and increased my time.
I think we are all different in terms of the activity which is most helpful. I do feel starting slow and working forward is better. Part of the problem at CC is they pushed me too much and that was even said after they felt I was pushed too much. That brings me to my next point is how key it is to work with people who know a lot about rsd. Did you mention have you been to a neurologist? If not I would go to one. Has your pain doctor put you on meds like neurontin or talked about other procedures?
Hang in there
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