I agree that a group of specialists is a great way to get things going. If you don't like the specialists, find another. This is your body and you have control over who touches it. I have been to physical therapy twice for my RSD and they couldn't really do much for me, but each client is different. I would like to add to the list of specialties, accupunture and behavior therapy (therapist, counselor) both need to be experienced with RSD and have, or have had several RSD clients. My therapists is a great place to vent, I work through my disability with him, I am fully disabled have had to leave my job, can't drive...have gave up a lot of my independence. My therapists really understands the illness and is extremely helpful. Accupunture is been great for me at handling the side effects of my many medications, it has also decreased sensitivity slightly.
Best Wishes,
Andrea
Quote:
Originally Posted by birchlake
Welcome to the forum. Sorry we had to meet like this.
I have CRPS in the foot as well. It is the result of multiple toe surgeries.
This is a good resource and a good place to vent.......
You will find that EVERY patient is unique as far as treatments. There are similarities of course, but you will have to find what works for you through trial and error.
It is best to use a multi-disciplinary approach to this disorder. The #1 piece of advice I can give you is to assemble a team of professionals that understands this disorder. That in itself can be difficult. Many doctors have had little or no experience with this. If you find one of those, say thank you very much and keep looking.
I use a podiatrist, physical therapist, chiropractor, massage therapist, general practitioner and a pain management doctor. Each one brings something unique to the table that has helped me. I do most of my own physical therapy now, as I was trained by a very competent and compassionate physical therapist.
Give us some details as to how long you had it, cause, specific symptoms, things you have tried, etc. That will help us in making suggestions.
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