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Now if only I could figure out how to harness that adrenaline, use it when I want to....maybe not so healthy for the body, but still, I wonder.
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This is exactly what ephedrine, albuterol etc. do, in a more mild, controlled and persistent way.
Of course they have their own side-effect profile and risks (like any medication), and like any symptomatic treatment they do not fully control the illness, but can definitely lead to some improvement (in those patients that respond to them).
It is interesting that you say, you have a few seconds of being stronger and then you become significantly weaker. Possibly this is what happens to people that think stress makes them worse. For me it can last for hours to days, and only then I crash. (probably when there is no more adrenaline in the system).
Interestingly, I have experienced what you describe (eg-a few seconds of feeling stronger and then crashing), when I tried acupuncture. I am still trying to understand why it happened. (maybe if I do I can avoid certain triggers).
Also, mestinon could do that to me. (that's why I stopped taking it at some point, because it made my illness even more "crazy").
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And, of course, there is no consistancy in my MG symptoms, seems my descriptions change every time I tell about my experiences, I wonder if people (I don't mean you guys here) think I am making it all up since I don't seem to keep my stories straight.
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This is the way MG is, and anyone that knows and understands this illness, will not think you are making it up. But, I know the feeling. Even now, when I look reasonably well and am able to talk I find it hard to explain that there are times when I can't even breath on my own. It's so wonderful and hard to believe when I encounter a physician or nurse that understand what is going on and know what to do.
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I haven't been keeping track, but I think I am having longer experiences of strength after being startled as time goes by...does that mean my MG is getting more mild? Something is changing, that is for sure, maybe this is just the nature of MG.
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This is also typical of MG. The way it changes. Every time you think you have got it, it plays a new trick on you. You may overall get better, and then one thing will get significantly worse.
My neurologist told me of a patient who had generalized MG and left sided ptosis. When she recieved PLEX, she had significant improvement in all her symptoms, except that now she had severe right sided ptosis. why? who knows.
Every time I tell him of something I think is really bizzare and hard to believe, he says to me-this is the most bizzare illness I have seen. I don't think any one really understands it. I think he is right.