Quote:
Originally Posted by daniella
Welcome to the boards though I am sorry for all you have and continue to go through.
It is good you have doctors who you feel are educated though sorry they lack communication skills. Do you have your records? I would get them and keep them in a binder. Also with the doctors notes. Then maybe you could ask specific questions from those things stated?
I can understand the worry because I live in that and causes anxiety. I see a psych to help with that and may go back to therapy. Have you thought of that?
I am not an expert like some on here of causes etc but did your doctors feel the past with cancer etc is impacting now with the neuropathy? Have they refered you to a pain doctor? I hope that you find the PT helpful and get some answers/relief
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Thank you for your quick reply. You are so right, I need to get my records. I need to feel empowered again and get some control over my life. I need to have input and understanding of this thing. When I had cancer, I was part of the treatment team, not a bystander. Also just to make myself clear, I know I am very, very fortunate to have top docs in this field. I have read on this board that many do not have access to specialists.
I want to ask my oncologist about the long term effects of taxotere. I know studies are being done. I just do not want him to feel threatened or that I am questioning his judgement. This man saved my life, he did the right thing. My neuro docs did all the tests for cancer and it has been ruled out. Thank God once more.
Reality check here. Right now my biggest problem really isn't why this is happening, but coping with the fatigue I get when I walk. I am fine when on my butt, but on my feet is a challenge.