Thanks for this thread. It's been a while since I've been here...I'm still sick and probably still in a bit of denial. I am going to have the MUSK test done as soon as I can make it into the lab.

My PCP is the one treating me and he said that he is 100% sure I have MG and he felt that there were probably undiscovered antibodies, variants of MG that could explain my situation. If only I could find a neuro willing to treat me. He prescribes my Mestinon and said he could order IVIG, plasmapheresis if needed.

Anyway, thanks for all that you are doing Alice to try and help those of us who "don't fit the mold."