Hi ladies,
I guess I'm lucky to have mine working my back and my legs, i know that Jackie has a different set up to the Medtronic that Karen and I have and i dunno how I have it working on both my back and my legs, my consultant gave me a choice before the permanent implant, he told me i could have it in both my legs or just my back, I said that my left side back and leg were the worst so thankfully he managed to put it on my left leg and left side back, it works much better for my leg but he told me that would happen.
Since then then I hope the revision surgery has helped my back too so I have the best of both worlds. When I went to see my Consultant to explain the horrible stinging sensation in my back, that the pain was bad too he mentioned the 2nd scs for my right side. Now i'm confused because when I mentioned it to him last week he said it wouldn't help my back... I dunno i'll chat with him in a month so nope I didn't have a 2nd stim put in, but confused yep. I suppose if this revision surgery help i might not need it.
I have researched Jackies stim and apparently it will only work on back or legs and not both but I'm not a doctor and i'm always surprised what can be done.
Regarding Karen's leads or paddles, that's the million dollar question? I hear the paddles are better as they are directly located around the spinal chord. I hope you hear soon, it means more surgery but if it helps you feel better....
It was a good idea to take a holiday before hand, get some heat in your bones, our summer has been pure rubbish, it's warmish here at the moment but not warm enough or sunny enough for me, this is the first year in 10 years we haven't been to the US and I hate that.
I'm in good form at the moment.... I say at the moment, tomorrow I could wake up and be like a demon for God knows how long...
My walk today was 10minutes on the Curragh with my husband and our dog.
Chat soon ladies...
Sinéad
Quote:
Originally Posted by Jackiey
Hi Sinead 
So good to read that you have had your revision and that things are looking UP, fantastic. Did you have a second stim implanted , or did they move the leads. Im curious to know how you got the stim to work up in your back!? I would LOVE mine to be in my lower back and further. But unfortunately I only have it when Im actually lying down and its only when its on quite high, which can be uncomfortable also. But a couple of weeks back I had a reprogramming session and the Rep was a guy this time, and he was fantastic. Gave me a programme whereby the legs were isolated and I could feel it all when I walked, which I havent had since the implant was done last August......so that is a bonus. I can higher the right or left leg individually....now why didnt my female Rep do that  anyway its doing the job but using WAYYYY more power, but I dont mind I just sit watching tv in the evening and recharge!!
Saffy (Karen, which do you prefer  ) so glad to hear that your holiday did you the world of good. Even the bit of sunshine would make you feel good, especially if you have anything like the atrocious weather we've had here in Ireland in May and June.....cant believe tomorrow is the 1st July .....WHERE IS OUR SUMMER????
My Consultant told me also that the stim will not help my LOWER BACK!! I was a bit disappointed because thats what my real trouble is. But I do have awful burning, tingling in my legs so it is helping that. But I wish at times my back would ease up......but then I suppose I have to take it easy(ahem!!!) but sometimes its hard to sit still , when all I want to do it GET OUT IN THE GARDEN!!!!
I hope you hear soon when you will have the paddles put in.....more surgery, but then if it helps and gets rid of that awful feeling you mention then its a bonus!!!
Take care
Jackie |