I have had chronic rt sided pain( sinus, nose, cheek, teeth, ear,eye and scalp ) pain for 4 yes. It started with a viral infection during chemo therapy( I also have chronic lymphocytic leukemia ). I have been through 5 neurologist , infectious disease specialist, 2 neurosurgeons, and 2 net's. I have tried all the usual meds for trigeminal neuralgia, multiple antidepressants , and narcotics . Almost nothing has been effective. I have constant pain,pressure, burning. I currently use gabapentin and lidocaine patches. The gabapentin dulls the pain most days a bit, not so good today. I have trouble talking for any length of time most days, and it can be a torture to socialize .

All my doctors just seem to want to sweep this under the rug and not deal with it. My leukemia is darting to relapse again and the pain is increasing. I find I don't want to get out bed anymore... I just can't deal.

Has anybody found anything that can reduce the symptoms???? I just want to be able to function..to enjoy my family.