Ron, Saffy, Sinead I am beyond myself with wonder why the providers of care, the techs who strive to program the units leave the patient out of the loop. YOU, the patients, are the people who KNOW what occurs within you body with each different stimulus. WHY DON'T THE TECHS DO AS MINE DID AND ASK "WILL YOU PLEASE SIT IN FRONT OF THE COMPUTER AND MANIPULATE THE CONTROLS AS I DEMONSTRATE SO AS TO DETERMINE WHAT WORKS BEST FOR YOU?" Why, why, why NOT!! Is it that Boston Scientific is the only provider out there willing to allow a patient to address their issue since they understand subjectively what is occuring in the affected body from inside the suit we call flesh and blood????

I repeat and challenge any vendor of such devices as to their process when the patient is to respond to a "How is this?" or "How is that?" as the tech taps on the controls. Where is the consideration of the patient, some of whom must drive or be driven hundreds of miles or kilometers in order to achieve a tweak!?!? Goodness sakes, I have not had to experience a tweak in the year my implant has been active. I have openly wondered whether this phenomenon is the result of my technician asking me to manipulate the computer to establish the four programs in my unit. Is it not possible? Why fly repeatedly between the U.S. and patients far removed when if they were more personally involved in the process they might actually receive a greater benefit?

Why?

I am truly baffled by the responses on the issue of tweaking again and again involving a tap to a screen or device in an interrogatory exchange between patient and technician.

Sorry for the rant,
Just baffled,
Mark56