Hello all!

New to vp shunt back in March, have not done well with it, so far 4 adjustments attempting to "get the setting right." I am deaf in one ear from acoustic neuroma surgery and my most recent shunt adjustment has me loosing hearing in my only hearing ear!! Neuro said not shunt related ENT said it is!! ENT feels it is overdraining! Freaking out, still leaking what may be csf and have laready had 2 previous repair surgeries. Right now we are trying to get what's left of my hearing back, then get me feeling better...and then probably a BIG expolratory surgery to "attempt" to find and fix? the leak. Aghhhh!

My head feels weird, inside since the shunt, am I really loosing it or are there others out there in shunt land that feel the inside of their brain? Inside of their ears? Weird