Hi Steve and welcome to the forum! While I haven't had any surgery for TOS and don't plan to, and haven't seen any of the specialists or had any of the tests they require, I have had numerous MRIs, CT scans, and EMG/NCVs and seen too many drs. to remember, from orthos to thoracic surgeons and so on. I've been dealing with TOS and neck pain,etc. for over 25 yrs. Over the years it's gotten progressively worse, but I've been able to mostly control mine with the help of a good neurologist and PM dr. and medication, chiro, massage,etc. My PM dr. and every other dr. I've seen have all recommended against the surgery- in fact, the PM dr. told me to "absolutely NOT" ever have the surgery unless it was an emergency like a blood clot. All of us here have some kind of limitations- some more than others, so we know what you're going through. And we've all had to deal with people thinking that we "look" perfectly healthy so we must be ....It sounds like you've got the right idea about that- what others think about you isn't important. I'm sure there will others along here to offer you some advice and who know more about all the tests and treatments that you might want to consider.