Dear FRxxxxxxxxx -

First of all, please see my reply to your last under Good grief, Has this EVER happened to any of you RSD'ers? .

But as to your neurologist, since you have to wait months to see a neurosurgeon, isn't there some RSD specialist somewhere in the NHS, say at a major medical school with who you could consult? This may be crazy, but with all of the money that is being spent on your care right now, I can't help but think that there isn't a genius somewhere in the system who could figure out hour to get you funded for a German ketamine trial. If it works, it would be a far less radical intervention than the surgery that your neurologist is proposing, this from someone who has only the vaguest notion of what RSD is all about.

What happens is you can't tolerate the vibration from the DBS? In know that with SCS they can hook you up to an external test unit for a week ir so, before they do the surgical implant. Is there any equivalent test run for DBS?

Forgive my intruding, but I feel compelled to share these thoughts with you.

be well,
Mike