I was dx from optic nueritis and brain lesions. I also have a brain tumor that has decided to just sit there and stare at me. An MRI of my gut showed lesions right in the spot where the vagus nerve is and the phrenic nerve, but this was years after my dx with MS.

There are a small handful that have been dx from gastroparesis as the main presentation, but that is a rare, let me say extremely rare way to be dx.

Please start with the GI guy and let him do the research. its best if you go to a university hospital or at least a teaching one. BIG center is better for this, since they have access to the research and are willing to go hunting for zebras.

GL