frogga - You are an AWESOME young lady!

It sounds like a totally retarded health system!

But you are tops in my book - I wish the best of luck in your fight for the best care you can get.

Have you considered writing the Queen mum? I'm not joking!

Ada got some help by contacting US legislators - maybe you can write for your cause to a high official in UK government?
It couldn't hurt to try it....