Quote:
Originally Posted by emma.laura
Hello everyone,
I am a 15 year old female who has had motor tics since I was 2. I started having chronic motor and vocal tics in grade 5 and have been diagnosed with Tourette's Syndrome this year. In this 6 (ish) months, I have had "flare ups" or episodes that look a lot like dystonic symptoms. They are by no means chronic, as I only get them with very high stress/anxiety levels. They happen in my hands, back, arms, and sometimes legs and face. Most of the time they last a few days where it will be locked in a vey uncomfortable and unnatural position or it will go away after my massage therapist spends some time on it! I also had a(n) episode or reaction this winter, I have no idea what it was, niether does any doctor I see including specialists, er doctors, psychiatrists, and neurologists. I was convulsing and rock ard everywhere and not respondng. My tongue was stuck out and my eyes were rolled up and I remember NONE of this. I am wondering, does this sound like anything anyone has ever experienced before? I've had tests done to confirm it is not a type of seizure. Is it maybe just severe Tourette's? Dystonic tics? Dystonia? Something else I'm unaware of? Any opinions would be great! Also, I'm on a very low dose of Clomipramine for anxiety/depression but it doesn't seem to have an effect on it.
Thanks!
Emma  |
Dear Emma.
Sorry you're dealing with all of this without answers.
Are you seeing a Neurologist? Who's prescribed the Clomipramine? How long have you been on it and have these sustained movements begun since you started it?
I have heard of people having prolonged tics, dystonic tics, but not for days as you describe. Tics, typically are less prolonged.
This is old, but describes dystonic tics in patients with TS.
PubMed[Dystonic Tics in patients with Tourette's syndrome
Mov Disord. 1991;6(3):248-52.
Have you looked into the Dyskinesias?
http://www.wemove.org/pdys/pdys.html
http://www.wemove.org/pdys/pdys_cc.html
http://www.wemove.org/pdys/pdys_dia.html
Edited to add:
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convulsing and rock ard everywhere and not respondng. My tongue was stuck out and my eyes were rolled up and I remember NONE of this.
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Emma, who were you with when this happened and described this back to you? Did it only happen only once? Never again?