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Old 07-10-2011, 05:07 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Abby, When I figured out that I had fatigable ptosis in eyelids and eyebrows since I was a kid (looking at K-12 photos in 2006), I knew that all those years of "adapting" were MG. I had close calls with breathing, like during the flu in 1968, but if you don't know something is wrong, you can easily pass it off as something else. The "funniest" memory was of looking through our binoculars. Objects always looked blurry, even with glasses on that corrected my astigmatism. I had to close one eye to see things clearly. Yeah, MG double vision. It didn't matter which eye I closed either.

So, write down memories, look at childhood photos and really think about all this. CMS's can be mild, though even mild ones can get severe. I have antibodies but I can't completely rule out CMS. My MG got worse when I had my B12 deficiency. That's when I began noticing all of my symptoms like ptosis (figured it out in 3-2000). You can't make acetylcholine well without B12.

Like Mike, I rely on coffee every day. I stopped it when I stopped working in 1998 and restarted in 2007. Should've kept having it. I only have one cup, in the afternoon, to give me a boost to get some things done.

Annie

And because I'm like a dog with a bone . . .

http://www.ncbi.nlm.nih.gov/pubmed/20030211

http://onlinelibrary.wiley.com/doi/1...1.00841.x/full

http://www.pierce-antibodies.com/Ant...l--MA3916.html

This has the "opposite" clinical presentation of you.

http://www.ncbi.nlm.nih.gov/pubmed/17539937

Has anyone been tested for Titin or Ryanodine?! I think you should be tested for both.

http://www.ncbi.nlm.nih.gov/pubmed/21034627

And, no, you're not a cow but this is a very interesting article!

onlinelibrary.wiley.com/doi/10.1038/sj.bjp.0705348/pdf

Last edited by AnnieB3; 07-10-2011 at 05:32 PM.
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