Thanks for your response Kicker.

H was dx about the same time as you, but had sx starting in 1995. He was walking without aids until 2005, then two canes in 2007, then into a chair last year. His arms and hands are still ok,for now. Takes a small amoutn of baclofen, but nothing else, except tylenol once in a while.

I wish there was some way of knowing how much worse things will get, but no one seems to know.