Is your doctor a neuro and does he have experience with MG? If your blood work and MRI (or cat scan) come back negative (like mine), next steps will be in the hands of your doctor. Mine ordered SFEMG (actually performed the test)...whcih was also not terribly indicative.

I was lucky - my neuro was only looking for validation for the clinical dx she had made when we first met. Since then I have been on Mestinon and frequent follow ups with doc. I'm really fortuante...so far so good. I hope the same for you and your condition - whatever they end up calling it!!

Good luck and please let us know how things work out. And try to take it one step at a time - - we here all know how difficult that is to do - - but unfortunately, none of these test results come in quickly.