Chelle - I am so sorry you are suffering so much and for so long and have no dx or a treatment plan that will work for you. I don't know ho you feel about alternative medicine. I go back and forth about it myself. But I do know many who have been helped by it. One lady I know goes to a Chinese practitioner and has been real happy with him. He does some pulse checking thing and has been able to treat her with herbs and she feels so much better. Another person I know goes to a naturopathic dr for her back issues. She gets accupuncture, massages, and herbs as well as other medicines. She just loves her as she has helped so much. My brother and his family go to a homeopathic dr and they love her as well. One of my massage therapists' clients had bone cancer. She started seeing a Chinese herbologist and he gave her some herbs to help her with the pain. It didn't cure the cancer but it did improve her quality of life.

Hearing others stories almost has me convinced to try going to one myself. BUT, it's the cost that prevents me. Medicare does not pay for alternative doctors/practitioners with the exception of a few of them. So, I haven't gone to any. The only thing I do is get a weekly 1/2 hour gentle massage. My massage therapist gave me a great rate, one that I could afford. These massages have helped me tremendously with all the spasms and such I have going on.

As for the sphincter, I know what you mean. I don't get that all the time but I have experienced it and it is painful - like take your breath away painful. Maybe mine is just a spasm, I don't know, but it will not release so that I can make movements. And, it can take a few days to settle down.

Do what you can to keep yourself comfortable. I will keep you in my prayers and hope that you finally get some relief.