Tulips, I am sorry you are having such pain, I can't imagine. How about some kind of poisoning? Were you under a great deal of stress when this started? This does sound unusual for neuropathy, but not un-heard-of. If mainstream medical doctors do not find you some relief soon, you might try some alternative treatments like meditation, guided imagery, accupuncture, traditional Chinese medicine. Dr. Andrew Weil has some good CDs on guided imagery. You might try at your library if you don't want to buy them.
Electron