I have had MG since March 2007. The 1st neurologist didn't have a chance
since I was angry with the fact that I had MG. After trying mestinon,
prednisone and azathioprine over a 3 week span, I advised the neurologist that I was tired of being a guinea pig, and I was not going to try anything
else. He advised me that he no longer wanted to be my doctor. Of course I was my worst enemy at this time. I stopped taking anything, and went into crises and spent 2 weeks on a ventilator, ane another week in the hospital.

I learned to accept the fact that I had MG, thus the 2nd neurologist had a better chance. We settled on mestinon (30 mg 2x daily) and prednisone
(20 mg daily) All went well for about 2 years.

At that time he stopped being able to practice at the hospital.

I went to a 3rd neorologist. She tried stopping prednisone, and go to
azathioprine. I discovered that she didn't have hospital priviledged.
I never tried her suggestion.

The 4th neurologist started out good. He sent me to Shands at the
University of Florida. They only confirmed that I had Mg. Since then (2years)
everything well with only 5mg prednisone every other day and 30mg
mestinon 3 x daily. 3 months ago I started having weakness in chewing and
neck muscles.

At that time he upped the prednisone to 20 mg 3 x daily along with mestinon
60 mg 3 x daily, and started me on cellcept generic 250 mg 2 times daily.
After 2 weeks, he increased to 500 mg 2 x daily.

He advised me that I would probably develop osteprosis. He has indicated that it will be his way only. I want to be able have some input, however due
to the 1st bad experience, I don't want to have another crisis.

The way I understand cellcept is that it suppresses your imune system, thus
making you secceptable to infections and many other side effects.

As I read many posts on this site, I see that it can take up to 6 months for
cellcept to work. Has anyone noticed a great Improvement anywhere up to
the 6 month time, or has anything gotten worse?