My ears are a holy MESS - loud noise makes me nuts. Its become one of the worse problems with my RSD. I have the foam ear plugs, they are a hideous blue green color. I need to get new ones and can't find any that I like. Any suggestions on where good ear plugs can be purchased would be appreciated.

I find that I can watch archived TV shows and movies via Netflix most easily on my IPAD, because I have my own volume control and there are no commercials (which anyone with sensitive ears can tell you really ARE louder!!).

Ketamine has helped some - I am somewhat better after my infusions. But nowhere near all the way better.

I HATE leaf blowers, garbage trucks, FEDEX drivers, school buses, lawn mowers, screeching children, cars that drive by with their radios turned all the way up, people that talk too loud, loud TV's at night, etc etc. I can't do loud parties or bars and most restaurants anymore. Quiet dinners with my friends are about it. But I'm usually too tired for much else anyway so that works!!

I have heard that one of the seizure meds might be effective for the ear nerve sensitivity (I forget the name, it's not one of them that we commonly take). I already take Topamax, which I know I need because when I tried to wean off of it I started getting migraines again. I really don't want to take 2 seizure meds at the same time - imagine the kind of zombie we'd turn into!!

Take care, Sandy