Wow...this is like "insights for MS peeps"...
I am mad at my neuro. I went in a couple of weeks ago, because my legs are so bad...the right one isn't walking right, the foot is goofy when I walk. He did notice that change.
But I have had so much pain when I walk for awhile, so much trouble with arm weakness...and all he did was "See you in six months."
So I am taking my care into my own hands. My requip isn't working as well again. In the past, I would call him, and he would take me off of it for two weeks and put me on gabapentin. I hate going off of requip. It is nerve-racking because my legs are jumpy almost all night the first two nights. So now I am just adding gabapentin to the requip the way my old neuro did. I don't have to go through withdrawal, and I feel better immediately.
I am not going to call him any more when something new crops up. Why bother, when he doesn't do anything different? It's an hour drive one way, then I wait for an hour because he talks so much he's an hour behind, and then I get no changes in treatment.
I have a definite prejudice against the medical profession.