xrpodn- i know you what you mean about the accepting the fact of MG..thats probably the hardest part of all of it...except going into crisis for the reprieve.

Your history of neurologists is quite impressive to say the least...I wish you would have gotten a more experienced neuro. maybe a specialist, have you tried that?

I had a few crisis earlier last year due a worsening of my MG after the thymectomy...sometimes that happens I guess. I was on (and have been) prednisone 60mg a day for a year and a half and that wasnt helping as I was so weak.

At Unc/duke i tried cellcept, and then when I transferred to Hopkins, they switched me to Imuran and that is working much better. I dont understand i guess, did you try azathioprine, or refuse to? It works for me much better or is showing much more hope than cellcept. I do IVIG monthly as well as prednisone and imuran to keep stable.


Cellcept sucked- point blank. The side affects started immediatly and i was told to deal with them for the 6-7 months it would take to work. Headaches, stomach pains, infections, etc. The infections was the worst part. I think cellcept makes you more prone to infection than imuran...or atleast that is what it did to me... i got everything...it sucked. Actually that may be a lie, at college, when on imuran I got pneumonia, menigitis, common cold, ear infections all the time...hardly went a weak without one of those things, hense I took a medical leave of absence.

Not sure what to tell you on th cellcept side of things...but it did not work for me and was much more expensive that imuran..


if you have any questions let me kno