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Old 07-14-2011, 06:33 PM
hydrotexan26 hydrotexan26 is offline
Junior Member
 
Join Date: Jun 2011
Posts: 18
10 yr Member
hydrotexan26 hydrotexan26 is offline
Junior Member
 
Join Date: Jun 2011
Posts: 18
10 yr Member
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Quote:
Originally Posted by Kwoznick View Post
Wow! I have had Hydrocephalus and a V.P. Shunt since 3 Months old! I am 21 now and very blessed to have only had one revision! I am sorry to hear some of you are having a Hard time adjusting to the Shunt! Honestly it has always effected me! I can't be out in the sun (or heat) like most people I end up getting real bad head aches and end up getting sick! I to battle head aches not quite as servere. I have head aches daily though which I control with Tyenol. It seems now though as I get older things bother me more. My neck hurts frequently and I have back problems which it seems to me most people with Shunts battle to. I am actually wondering now I am sensitive on that side of my head and can no longer sleep on my side. Does anyone have days where it hurts kinda just sore as if it was slept on! I have been having this pain 2 days now and I tend to freak out when I get things or pain that i've never before had. It seems now as I get older I have extreme tiredness all the time I've been battling two years now. Well regarding everything else I am thankful to have found a site where I can speak with other People with shunts and see if my issues are similar. I will certainly keep my ears open regarding these servere head aches. From what i understand it has something to do with the pressure. The shunt may be pumping to much or not enough. I have had these but not that bad since my shunt failed 12 years ago. My nuero surgeon has gone out of his way to explain the shunt and how it works and I hope my experiences can help you guys in Some way. Thank you for Listening and you are all in my Prayers

Katrina
Hi Katrina, I've had hydrocephalus since I was 2 months old and am now 26. I've had about 4 revisions in my life. The last was last week. I had been having similar symptoms that you are describing. After a head ct and shunt flow study they determined my shunt was still working, but not to its full capacity. He explained that the vp shunt I had in was at a fixed pressure. He replaced mine with one of the new programmable shunts where they can change the pressure in the dr's office. So far so good! I got in next week to get stitches out and hopefully he will release me back to work. Have you been to your dr since you've been having these symptoms? You might want to get checked out if the pain persists. Take care!
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